Current status

Thanks for stopping by! Our little trooper is doing well. He is now walking with out assistance (short distances), nearly running and dancing. It truly is amazing, and it still takes my breath away when I see him on his feet!

Zac's platelet levels have remained at a safe level (about 1/4 of the average child) since he was 3 1/2 months old!

Cai is the protective, helpful older brother...with the exception of those "normal" brotherly love moments;-)

All in all we are doing well, just dealing primarily with "normal" life challenges. We are so pleased to have gone through the past few years to be where we are now. It truly has been the best of times -the worst of times. We thank God, and our friends and family and all of you who have given in so many ways to help us through, we are so grateful!!!


Monday, October 20, 2008

x-rays done...waiting for review

We were finally able to have Zac's x-rays done today -locally. They have been mailed off and we are awaiting the review, and if he is ready for the next surgery. I was thrilled today that Zac was such a big boy and did not even cry! He is normally terrified of the x-ray machine, and having his legs held down. Today the technician spoke to Zac, telling him exactly what he was going to do, when he was going to do it. I think there was actually a connection with this guy. Too bad this guy isn't in Baltimore....!

Hopefully the x-rays are good enough and Dr. Paley will be able to have an answer for us by the end of the week.

Tuesday, October 14, 2008

Next surgery coming, but not yet scheduled

I've been waiting to get the date for Zac's next surgery, but we have not been able to narrow it down yet. It seems that the clinic is having some difficulties with the schedule.

At the last follow-up on Sept. 29th Dr. Paley said that it was time to schedule the surgery to align the bones and to do the knee reconstruction for the left leg. We were looking at the last week in Oct., but at this point it is doubtful that it will be that soon.

X-rays were done on the right leg (the first leg that was done last year), but when we asked about it, Dr. Paley just said that he looked at the x-rays, but he just wants to focus on the left leg for now. We are uncertain what that could mean, and what he may not be telling us, but we will go with that for now. If you will remember the Right leg is already shorter than the left leg; this may mean that there is a problem with a growth plate.

Please pray with us for the orchestration of the surgery, the physical Therapy that will change after surgery, and for continued provisions for our travel, and monthly expenses. Also, for continued strength through this process.

Thank you!