2 Quick things:

1)We are headed to FL next week for Zac's follow-up apt.

2)Zac walked on Friday in a walker. This walker has a harness that is attached to a bar with a regular walker base. We are trying it to see if we want to order it...so far so good! This is actually not just a trainer, but a mobility devise.

Please pray for one of our support kids family....

My heart is heavy as I post this. One of our kids on the TAR support group (also named Isaac) passed away. It is hitting way too close to home! I think when they are doing so well, we forget about the dangers of having low platelets. I just can't stop crying right now. Please pray for this family.

The post on the TAR Support group site:
"It with great sorrow and tears that I write this email. Isaac passed away yesterday. He fell Saturday and hit his head. Trauma was worse that what we expected and his brain would not stop swelling. We wanted everyone to know as we know many people do not take the paper.

Services will be at Debaun Funeral Home on Wednesday July 15 from 4 pm - 8 pm. Funeral services will be help at 10:00 am Thursday morning." Christa Foust

Her is a link to the obituary: http://www.legacy.com/tribstar/Obituaries.asp?Page=Lifestory&PersonId=129713337

High Point Enterprise news article, June 14, 2009

Power Wheels!

The power chair finally arrived today! Zac has really been looking forward to this. He believed that it would come complete with flames in the back. We said we may find some flame decals, but no, he insisted that they should come out of the back of the chair! Thankfully he was not too disappointed today when it arrived flame-less! I think he was somewhat overwhelmed by it all. We kept it a surprise that today was the day it would arrive. Nana and Papa Ogg decided that a video would be great so they should come too, I think it was a great reason.

As soon as Zac got in the seat he new what to do. I think he remembered from the trial chairs. Thankfully we were able to be outside, he was really wanting to go. There will be a learning curve for all of us. But, he looks like he will get the hang of it soon. I am sure that I will have a few heart attacks along the way. The good thing is that there are some great safety features and speed controls that will help.

We are moving quickly towards walking, but this chair will provide great independence for long distance, etc. He is getting heavier to carry, so this will help with that too. The chair lowers all the way to the ground; he should be able to get on and off by himself. There are also tilt features that may help him to reach things at different heights. All in all it is just amazing that it is here, we are so thankfully for this blessing!

And then they were straight....

Just thought it would be fun to see the progression of Zac's legs...


1) coming home from the hospital 2) 2 months 3) 1yr 4) Aug. 2007 1m post surgery
5)Aug. 2008 post surgery 6) done with both legs, fitted with braces April 2009

Saying goodbye

Zac always wanted to play with Potato Head with this therapist. He even got a new Potato Head as a gift from her today;-)






This therapist brought interesting projects to do, such as planting flowers as they are doing here.







We are feeling a little sad today as we say goodbye to two therapist that have been with Zac most of these past 3 years. Zac will be graduating from the Early Intervention program, and moving onto the Pre-school program. We were not expecting placement in the Pre-school program as he is not developmentally delayed; however they determined that the Pre-school placement would help make transition to Kindergarten much easier, and keep him from any delays as he does not access his education the same way as a typical child.

We have been so grateful to have the therapist, they have kept Zac on track, assisted me with any questions, and provided many solutions. Zac (and all of us) would not be where he is today with out their help! They have made it seem like play, and Cai always looked forward to them coming, too; they would let him help. They have been more than therapist, but family friends! They will be missed!!!