Zac's surgery has been rescheduled for Tues. at 7:30am. He has a Hematology apt. on Monday morning.
Please pray that Zac is well. There was a lot of rain the other day and it has flared up his allergies. He is also coughing from having been sedated on Wed. It is very nerve racking. We are praying for clear sinuses, and exceptional health!
It has been a challenging week. We are trying to enjoy the down time. It does give us time to think and to pray. Although difficult to surrender at times. I have been able to seek my Father and to know that what ever happens will be in His complete and perfect will. Grace is what I need to face what ever He has in store for Zac and for us. If there is any thing that I have learned on this journey it is that "God knows, I don't what is good for me." (a Bryan Duncan song) Thankfully! One day we will know....
Thanks for keeping up with us. I can't believe that 2 1/2 yrs later we are still doing "updates." It hasn't been just one storm though, just a series of storms, with some hill tops along the way. We are finding joy in the journey....God is faithful!
Even youth grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. Isaiah 40:30-31
Current status
Thanks for stopping by! Our little trooper is doing well. He is now walking with out assistance (short distances), nearly running and dancing. It truly is amazing, and it still takes my breath away when I see him on his feet!
Zac's platelet levels have remained at a safe level (about 1/4 of the average child) since he was 3 1/2 months old!
Cai is the protective, helpful older brother...with the exception of those "normal" brotherly love moments;-)
All in all we are doing well, just dealing primarily with "normal" life challenges. We are so pleased to have gone through the past few years to be where we are now. It truly has been the best of times -the worst of times. We thank God, and our friends and family and all of you who have given in so many ways to help us through, we are so grateful!!!
Zac's platelet levels have remained at a safe level (about 1/4 of the average child) since he was 3 1/2 months old!
Cai is the protective, helpful older brother...with the exception of those "normal" brotherly love moments;-)
All in all we are doing well, just dealing primarily with "normal" life challenges. We are so pleased to have gone through the past few years to be where we are now. It truly has been the best of times -the worst of times. We thank God, and our friends and family and all of you who have given in so many ways to help us through, we are so grateful!!!
Friday, July 25, 2008
Wednesday, July 23, 2008
Surgery canceled again
Zac's surgery was canceled again today. He was back in the OR, and sedated; however his platelets were too low to perform the surgery. We were under the impression that if this were the case that they could transfuse, and then do the surgery; however this surgery is about 5 hrs, and the transfusion would add too much time to the amount of overall time of sedation. Dr. Paley opted to cancel the surgery for today! We are so frustrated as this is the 3rd attempt for this surgery as the other 2 times Zac had viruses at the last minute. We are hoping to reschedule for next week. Please keep us in your prayers through yet another emotional roller coaster, and trying to keep Zac well. It does not make sense to us, as all the knowledge that we have points towards needing to have this surgery and soon. We are not sure why there have been so many obstacles, but we are still believing that God is in control and only He knows the bigger picture. It makes it challenging to have complete surrender, but we know we must. It also gives us hope knowing that there is a bigger picture, and that God knows best. Please pray for grace as we wait, again! Thanks, LeAnn
Thursday, July 3, 2008
please pray for Spencer
Please pray for one of our little friends. Many of you may have checked out his web site before, www.Spencerhawk.com . This was posted on our support group site that Spencer is in surgery and it is taking much longer than expected. It looks like the leg they are operating on may need to be amputated. They had attempted to straighten it a few months ago, while at the same time they amputated the other leg. There were complications with the first surgery, but this time they were going to put an external fixator on it, however they have lost circulation in his foot, and may not be able to save the leg. He is in California, and has a different surgeon than Zac, but it really hits home! Please, please pray for this little guy. He is now 7 yrs old, and is very similar to Zac in that he has the shortest arms and fused knees.
Thank you all!
Thank you all!
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