Current status

Thanks for stopping by! Our little trooper is doing well. He is now walking with out assistance (short distances), nearly running and dancing. It truly is amazing, and it still takes my breath away when I see him on his feet!

Zac's platelet levels have remained at a safe level (about 1/4 of the average child) since he was 3 1/2 months old!

Cai is the protective, helpful older brother...with the exception of those "normal" brotherly love moments;-)

All in all we are doing well, just dealing primarily with "normal" life challenges. We are so pleased to have gone through the past few years to be where we are now. It truly has been the best of times -the worst of times. We thank God, and our friends and family and all of you who have given in so many ways to help us through, we are so grateful!!!


Thursday, January 22, 2009

The house of healing needs healing!

Below is a clip from Sinai's website. The Hackerman-Patz house has been our home away from home, and provides much healing for many families. Today the house is closed due to extreme flood damage after a pipe burst in the second floor. This happened the day that Zac was released from the hospital. He was released in the afternoon so we were going to stay the night and then return home on Sunday, the next day. The staff transferred all of the residents to a local hotel, which is where we stayed that night.


While James packed all of our things up he said that he was walking in water. The flooding came from the second floor when a pipe burst in the walls. It took them some time to even find it and get the water shut off. The ceiling fell in one room. The light fixture fell in the room we were staying. James had moved his laptop computer (used to continue his online classes) to the "safety" of the bed, but when the light fixture fell, it dumped water directly on the computer! Needless to say it, it is not working. Thankfully the house insurance will reimburse the repair bill.

This home holds a special place for so many people. Some of whom are displaced to a local hotel. New residents will have to find other places to stay which are much more expensive and inconvenient to the hospital.

It is unclear how long it will take to repair the house. We were told yesterday that even after the insurance clears, there will need to be fund raisers to help cover the expenses.

The house holds many memories for us, it has a very special atmosphere where parents can connect with others dealing with many of the same issues, and kids can be kids despite the difficulties of what they face.

The Hackerman-Patz House at Sinai Hospital

The Hackerman-Patz HouseThe Hackerman-Patz House is a comfortable and convenient place to stay—a home away from home—designed with the patient in mind.

The front door of the Hackerman-Patz House is just steps from the Rubin Institute for Advanced Orthopedics, the International Center for Limb Lengthening, Sinai Hospital and the campus of the Levindale Hebrew Geriatric Center and Hospital .

The staff at the Hackerman-Patz House is dedicated to keeping guests safe and secure, and to helping to create an atmosphere that is as homelike as possible. You will have the freedom to maintain the privacy of your family so that you can draw strength from one another, and, if you choose, the opportunity to find support through interaction with other guests.

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