We get to postpone our next follow-up with Dr. Paley until Sept. 8th. We are relieved by this as James will be starting Jury duty next week. Zac is still experiencing quite a bit of pain and is on the pain meds around the clock. It seems as though he was done with the meds by this time on the rt. leg. It is a blur to remember those days. I am really looking forward to a drug free baby!
Zac is already scooting on his bum! He has been really good at this, especially with one leg bent and the other in the brace. We were unsure how he would do this after the surgery with 2 straight legs. Well, he thumps his leg with the brace, and pushes off at the same time. Although he is slower than before, he is doing it! He is rolling as well.
We met with Zacs therapy coordinators today, and an assistive tech. rep. It is always a challenge to come up with new creative things for Zac. Although, most of the time he figures it out himself. We are looking into ideas for eating with utensils, and bathroom needs. I don't think that we will do much potty training until after the surgeries, even though he is showing signs of readiness. That is going to be a challenge that I can put off for a while!! What we discussed today involves the transition from the early intervention to formal education. They actually start doing IEPs (Individualized Education Plan) at this point of transition(when they are 3yrs,) even if they do not start school until they are 5 yrs. This just seems overwhelming right now thinking about the educational process and all the challenges that it will involve, including the social!! Ok, one day at a time....big sigh. For now he is an amazing 2 yr old, who does not seem intimidated by any obstacle that comes his way. He teaches me so much, but I am slow to learn!!!
Even youth grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. Isaiah 40:30-31
Current status
Thanks for stopping by! Our little trooper is doing well. He is now walking with out assistance (short distances), nearly running and dancing. It truly is amazing, and it still takes my breath away when I see him on his feet!
Zac's platelet levels have remained at a safe level (about 1/4 of the average child) since he was 3 1/2 months old!
Cai is the protective, helpful older brother...with the exception of those "normal" brotherly love moments;-)
All in all we are doing well, just dealing primarily with "normal" life challenges. We are so pleased to have gone through the past few years to be where we are now. It truly has been the best of times -the worst of times. We thank God, and our friends and family and all of you who have given in so many ways to help us through, we are so grateful!!!
Zac's platelet levels have remained at a safe level (about 1/4 of the average child) since he was 3 1/2 months old!
Cai is the protective, helpful older brother...with the exception of those "normal" brotherly love moments;-)
All in all we are doing well, just dealing primarily with "normal" life challenges. We are so pleased to have gone through the past few years to be where we are now. It truly has been the best of times -the worst of times. We thank God, and our friends and family and all of you who have given in so many ways to help us through, we are so grateful!!!
1 comment:
These kids are just simply amazing aren't they? The way they adapt to any situation and the things they teach us! You are a great Mom Leann, don't be hard on yourself. You are amazing!
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