I just logged onto our support group site and found this post. As a mom with a child of special needs the changes in our government, and the economy it has been a concern as to how these changes may effect those who are truly in need...the most vulnerable! This post gives me cause for concern. Many children with special needs do not have a loving home that will provide all that they need no matter what. Zac has benefited a great deal from these services, I can not imagine not haveing them!
"Hello everyone,
I usually write about all the great things my amazing little girl is
doing, pouring my life and feelings out to all of you. A year ago I
didn't think my life could get much more complicated than having a
child with special needs but I new everything would be okay because I
am an Developmental Specialist and I had so many connections to
services for her. I knew I could give her the best chance for a
positive future. I know my Lord is always looking out for me and
hears my cries for help but now more than ever I need my prayers to
be heard. Yesterday it was made official.... No Early Intervention
Services for any child not receiving federal funding. Now not only am
I out of a job, a job I loved with my whole heart, a job that was
understanding to Emily's needs and my responsibilities to her as a
parent. Not only am I out of a job that I have been doing for over 10
years, now my little girl and many other special needs children will
not be getting much needed services to better their future. I can't
believe that anyone thinks that this is okay I don't understand how
someone can just take services away from children or people that
can't speak for themselves. Please keep us in prayer I know that I
myself am going to shout from the mountain top and ask God to change
this. I am going to fight this I don't know what I am going to do
next but this can't happen." Brooke Mommy to Emily 11 months
Zac is due to graduate from Early Intervention in May. He is undergoing testing and evaluation now, and we meet with the team in May again. What we have been told now is that he does not qualify for any other services because he is not developmentally delayed. We are working on this, because obviously he is Orthopedic Impaired. He is really needing OT right now, and obviously PT. They do believe he will qualify once again when he goes to Kindergarden. So far our state has not stoped any services that we know of due to expences.
Just something to think about, pray about, and to act if you can.
Even youth grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. Isaiah 40:30-31
Current status
Thanks for stopping by! Our little trooper is doing well. He is now walking with out assistance (short distances), nearly running and dancing. It truly is amazing, and it still takes my breath away when I see him on his feet!
Zac's platelet levels have remained at a safe level (about 1/4 of the average child) since he was 3 1/2 months old!
Cai is the protective, helpful older brother...with the exception of those "normal" brotherly love moments;-)
All in all we are doing well, just dealing primarily with "normal" life challenges. We are so pleased to have gone through the past few years to be where we are now. It truly has been the best of times -the worst of times. We thank God, and our friends and family and all of you who have given in so many ways to help us through, we are so grateful!!!
Zac's platelet levels have remained at a safe level (about 1/4 of the average child) since he was 3 1/2 months old!
Cai is the protective, helpful older brother...with the exception of those "normal" brotherly love moments;-)
All in all we are doing well, just dealing primarily with "normal" life challenges. We are so pleased to have gone through the past few years to be where we are now. It truly has been the best of times -the worst of times. We thank God, and our friends and family and all of you who have given in so many ways to help us through, we are so grateful!!!
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