Current status

Thanks for stopping by! Our little trooper is doing well. He is now walking with out assistance (short distances), nearly running and dancing. It truly is amazing, and it still takes my breath away when I see him on his feet!

Zac's platelet levels have remained at a safe level (about 1/4 of the average child) since he was 3 1/2 months old!

Cai is the protective, helpful older brother...with the exception of those "normal" brotherly love moments;-)

All in all we are doing well, just dealing primarily with "normal" life challenges. We are so pleased to have gone through the past few years to be where we are now. It truly has been the best of times -the worst of times. We thank God, and our friends and family and all of you who have given in so many ways to help us through, we are so grateful!!!


Tuesday, March 10, 2009

too smart for his own good...

We are currently transitioning Zac from Early Intervention. All of the evaluations by various therapists, psychologist, and Pediatrician have had excellent results from a cognitive stand point. We are torn as parents as we are proud of how well he is doing, how hard he is working, yet he is not helping his own cause. The focus for the state is educational assistance, but he is proving over and over not to have any developmental or cognitive issues at all, yet he has orthopedic impairments and cannot access his education without constant assistance. At the age of 3yrs he will not require full time education, yet he requires OT and PT --that will also aid in accessing his education. Without this qualification then we would need to soley rely on insurance for OT and PT --they only allow a limited amount of visits. Do we fight this decision, or do we let it go and fill in these gaps somehow on our own?! I don't think these guide lines were written for the Zac's in this world. Once again he is the exception to the rule.
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